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United by Blood

Well I’m ready for a rest! Last week I was in Orlando at NHF’s 70th annual meeting, and last night, at the New England Hemophilia Association’s Red Tie Soiree in Worcester, Massachusetts. And while there is so much happening with new products, with gene therapy coming closer, new programs for our

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Shire: a hematology company with innovation in their blood

This is a paid public announcement from Shire and does not constitute an endorsement of products or services.  When you click on the links in this blog entry, you will be directed to the Shire website.  LA Kelley Communications always advises you to be a savvy consumer when contacting any company; do not reveal identifying

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The Importance of Plasma

“Das Blut ist ein ganz besonderer Saft” (Blood is an absolutely remarkable fluid)–Goethe, in Faust It’s Plasma Awareness Week! One of my favorite celebrations, because plasma is truly the gift of life. 55% of your blood is made up of plasma, and it is a vital ingredient in many therapeutic products to treat diseases and

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Wine and hemophilia: what’s the connection?

“A bottle of wine contains more philosophy than all the books in the world.” Attributed to Louis Pasteur Was wine ever considered historically as a treatment for hemophilia? Richard Atwood, our contributing writer from North Carolina, offers this week’s blog about the history of wine as a medicine, by summarizing a book he read. Salvatore

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Factor replacement–treatment you can rely on

I travel to many countries where factor is not available to patients with hemophilia and it’s heartbreaking to see the damage bleeding can do. We are fortunate in this country to have factor replacement therapy. Read below for a quick summary of its benefits, and why it’s so important for patients. This is a paid

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Hiking for Hemophilia

Yesterday was a beautiful, sunny, crisp fall day in New England, and perfect for a hike. Hiking is even better when you can hike to help! The Hemophilia Alliance of Maine (HAM) hosted its fourth annual Hike4HAM, at Camden Hills State Park, where we would hike up Mt. Battie. A one-hour hike up offered spectacular

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He Planted Kindness: Kyle Callahan

 A tree is known by its fruit; a man by his deeds. A good deed is never lost; he who sows courtesy reaps friendship, and he who plants kindness gathers love.  —St. Basil I’m in Nashville, waiting to board my flight home, leaving behind many hemophilia community members who came to pay tribute to a

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