Blog Archive

Monday, June 18, 2007

Bloggers Unite!

Blog tracker Technorati estimates there are 100,000 new blogs created each day, and 1.3 million posts added daily. The blogging "elite," who have at least 500 other blogs linking to them, number about 4,000. We fall short of these stats in the hemophilia community. We have maybe two, three blogs? We are just in the early stages of developing hemophilia blogs, and HemaBlog is among the first, and definitely the first blog dedicated to solely hemophilia issues.

And we are evolving at last. I received a friendly email this past week from Johnpatrick, a young man with hemophilia and fellow blogger. He has been reading my blogs, and wondering where are all the other people with hemophilia on the internet? Where do they hang out? Are they interested in reading about other people with hemophilia? Good questions!

Johnpatrick writes, "I'm a twenty-something with severe factor VIII deficiency with an inhibitor, and I've decided to take a cue from people like you and Shawn Decker (author of "My Pet Virus") and start a blog about the hemophilia experience. I think I can bring something new to cyberspace by talking about my own experiences as a hemophiliac and law student. I don't know a lot of hemophiliacs, and I don't know where in the internet they tend to hang out. I was hoping you could help me, a fledgling blogger attract young professional hemophiliacs like myself to the site.

Johnpatrick's web site is: http://breakingtheseventhseal.blogspot.com/

It's very interesting and well written. Please take a moment to visit him and drop him a line, especially if you also are a young man or woman with hemophilia. He has an interesting post about hemophilia and Colin Powell. And we welcome your comments as well!

Speaking of lawyers, here's a good book I am reading: "Thirteen Moons," by Charles Frazier, who also wrote "Cold Mountain." Sober, beautifully written personal account of a white boy raised by the Cherokee, who later becomes a lawyer and tries to defend them and preserve their land and way of life when President Jackson orders all Indian land forfeited, and all Indians to relocate to the West. It is historical fiction, yet a subtle, pragmatic and blunt look at our nation's handling of America's indigenous people.

5 comments :

ForresterMom said...

glad to see the hemo blogs on here. My little boy is turning 1 year old next month and I have been blogging our experience since first learning about his condition. The first blog is a mix of day to day living since I have a 3 year old who is unaffected. The second blog relates more to my feelings as a mom dealing with a baby who has severe hemophilia. Hope others can relate.
www.captjackandwill.blogspot.com
www.bleederbaby.blogspot.com

sarasarasara said...

I also have a blog about our experience with hemophilia. My youngest son was diagnosed when he was two days old. There is no history of the disease in our family. It has been quite a journey.

sarasarasara said...

Sorry, I forgot to leave the site address. It's www.imbruisednotbroken.blogspot.com

ReginaLFloyd said...

Glad to see more blogs and information are hitting the internet. My Hemophiliac son is now 18 and I wish something like this had been around when he was little. He is the 9th on my mothers side, and my older brother was affected by Hemophilia also so I was familiar with it. Nothing prepared me for dealing with it on a day to day basis with an active toddler though. My local foundation, Hemophilia Foundation of Nevada (www.hfnv.org) is working on our website and we hope to have an active blog working soon too. I now have the pleasure of raising an adopted 6 year girl affected by Hemophilia as well. Thanks to all for your inspiration.

Ray said...

HI I also have a blog for and about Hemophilia. It is updated weekly and I try to help with information for people who have Hemophilia and their friends and relatives, especially if you are over 50. Please visit and leave a comment or help with information that might help improve someone’s life at: http://blog.raymondperreault.com
The more the merrier
Thanks,
Ray

 
Bayer