Blog Archive

Monday, July 30, 2007

Hemophilia in the Philippines



We enjoyed a visit last Friday by Father Don Kill, a Columban priest who has a mission in the Philippines. He operates a home for teens without families or homes. About five years ago he discovered a boy on the streets who was unable to walk, and whose family was unable to care for him. Father Don took him in and through a variety of testing to find out what was wrong, discovered that "Dodong" had hemophilia; even Dodong didn't know it. Father Don contacted his home parish in Toledo, Ohio, for help, which then contacted an Ohio NHF chapter, which then contacted us! Dodong soon had a donation of factor.

Since then, Father Don has discovered about 20 children with hemophilia throughout the province he works in. Through our partnership, we are bringing care to all. Father Don registers the boys with the national hemophlia organization, has them tested at the HTC in Manila, and requests factor donations from Project SHARE. As Father Don is a trusted colleague, we also enrolled many of the boys in Save One Life, our child sponsorship program. So in addition to factor, these boys are getting an annual stipend of $240 to ease the burden of poverty and a chronic disorder.



Every year Father Don comes to the US to visit all his sponsors and to fund raise. This includes a visit to us, to brief us on developments, to collect more factor to bring to the Philippines, and to go to lunch with us. This year we made extra contributions to pay for having some of the boys travel to Manila for testing, and also contributed to pay for antibiotics for one young man with inhibitors, who is having a very rough time currently. Father Don is a valued partner in care, and our boys in the Philippines are fortunate to have such an angel on their side. And so are we!

If you'd like to learn more, visit www.SaveOneLifeInc.org.

(Photos: Father Don with Laurie Kelley and Julia Q. Long, director, Project SHARE; Father Don with Jeannine Cardoza, executive director of Save One Life)

12 comments :

Tiffany Allison Villaflor said...

hi!
i'm tiffany allison villaflor from the philippines,i'm 13 yrs old female,i also have hemophilia with inhibitor.i would like to ask for donation of factor VII cause i have factor VIII deficiency.my left knee is swelling and i can hardly walk.i hope you could help me with my problem.God bless you!

Laurie Kelley said...

Tiffany,

We have no way of contacting you directly. Please send your email address or street address, or name of your doctor and your doctor's email address to us: info@kelleycom.com or write to us at LA Kelley Communications, 68 East Main Street, Suite 102, Georgetown, MA 01833 USA. We hope to hear from you directly.

Laurie Kelley said...
This comment has been removed by the author.
ronwaldo reyes said...

Good day. I am a concerned individual living in Marikina City, Philippines. I have a friend who has Hemophilia B since his birth. He used to share me some information about hemophilia. He told me that a factor IX concentrate is the one needed to help Hemophilia B patients. Unfortunately, it is not easy to find suppliers of factor IX concentrate. Also, their organization, the HAPLOS foundation, is having a hard time to seek support from other private institutions.
With this, I wonder if your company could extend your helping hand to this foundation to be able to support hemophilia patients here in the Philippines. I know this is so informal but I am just a simple individual who aims to help my friend and their foundation. I can’t find any other way to help them.
I am hoping for a warm response from your office regarding this matter. I hope you could help the hemophilia patients here in the Philippines. Please do send your reply to ronwaldo.reyes@yahoo.com. Thank you very much and God bless.

kristian said...

Hi!
I'm mark kristian santos from marikina city, im 17yrs old, i have hemophilia b, I would like to ask if you could help me because we dont have money to buy factor IX, I just got hospitalized for 1 month last september of 2008, because of bleeding if my psoas muscle and in my lungs, i hope you could help me, you can email me here kristian_060483@yahoo.com, ty and God bless!

Anonymous said...

hi there, i'm Kenneth Borromeo and 25 y.o.from Cagayan de Oro City, Mindanao, Philippines. I was diagnosed of hemophelia type A when i was 3 y.o. Current medical treatment status here in my city, i was lucky enough to live at this age. Will you please help secure or tell me where purchase a concentrated factor XIII vial? atleast i want to live a normal life or closer to normal life. i was planning and trying to..... i think i can live closer to a normal life if i can use this vial as a prophylaxis. there are several times that i experienced near to death but thank god..He Help me but as much as possible i want to help my self from happening this again. i would appreciate any help..thanks and god bless you.

mit_17xjl@yahoo.com

yuen said...

My name is yuen. I'm a first time mom. My son was born last august 13 2009 and has been hospitalized twice. He has been diagnosed to have a severe hemophilia A.
I want my son to live a normal life. I believe that there's a lot of beautiful things that awaits him.
We need help for his factor 8 concentrate.
i love my son so much and it kills my heart each time i stare at him.
i wanted to give him the life that he deserve.
A life full of love,joy and gratefullnees. not a life of pain.

Please help.
here's my email address: yuenregala@yahoo.com

Anonymous said...

Hi my name is Ian, my son was diagnosed with severe hemophilia a,
he is only four months old.

please help my son... i'd do anything for him...

we need factor 8 concentrate right away so he can get vaccinated as soon as possible.

we do not know where to get it and if we do find it we dont know if our money is enough. when my baby was hospitalized immediately after he was born, after one week i was so excited to take him home at last. after three days we took hem back to the hospital because of his swollen thigh, he was just one week old at that time, it crushed my heart.

i'm hurting right now becasue we have a huge debt. and i dont know if i can get the money on time when we find the factor 8 concentrate, we need your help. my seen needs all the help he can get. please help us...

please contact me at idalejan@yahoo.com
0906 240 3635

Anonymous said...

Plase help us... we need to get factor 8 concentrate. my son needs to be vaccinated and he has severe hemophilia a. we dont know where to get the medicine and i dont know if we have enough money to buy it...

please help us.


please contact me at idalejan@yahoo.com
0906 240 3635

emmanuel said...

Hi!
Im Emmanuel L Laude,Im 24 yr old a hemophelia to..father don visited me when im confined in socccoro hospital here in cebu last week..I would like to say thanks to u father don nd to all the member of the organization...god bless us

Erwin S Duran said...

Erwin Duran.

Hi I'm Erwin Duran from the Philippines. I have a 3 years old nephew who is suffering from hemophilia. i would like to ask for your assistance so that he can get some donations for his treatment. my nephew's name is Caleb Miranda and is currently confined in the children's hospital in Quezon city. you can contact me on my mobile phone. its 09327579838. and my email address is es_duran@yahoo.com. Thank you in advance.

Ezra said...

Hello,

I am a hemophilia A Severe. I am rom the Philippines. My left knee is swelling every week so my doctor said that I must prophylaxis 6 vials (280 iu) per week, we cannot afford it. I would like to ask for donations.

 
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