A quiet Sunday morning, everyone sleeping, and I am up making muffins... when Tommy calls. 8 am? I hear Slipknot's "Wait and Bleed" ringtone blaring, and answer. Tommy was in Lowell, Massachusetts last night, staying over at his apartment. Not likely he would be coming home at 8 am on a Sunday. He said he needed factor right away and left his supplies with us. What happened? He fell.
About 15 minutes later he showed up, looking like he had been in a horrible fight. Forehead, cheek, nose and upper lip swollen and scraped. His nose had bled a lot. He and his buddies had been horsing around at 2 am, when he grabbed one of their hats and ran. He must have hit a patch of what we call "black ice" and slid then fell face first, and kept going. His face scraped the pavement.
Of course we're less worried about what the outside looks like than what's happening inside. That he waited 5 hours to get factor into him was a bit disconcerting. Did he hit his head hard, and where? He isn't sure. So for the second time in a month I get infuse my adult son. His hands and elbow and knees are scraped as well. The last time he infused himself (last week) he missed the vein, and must not have held the gauze on too tightly afterwards. His hands are both completely black and blue. So we go for a vein up higher in the hand.
This is an interesting time, folks. Transitioning. As a parent you get to see if 21 years of care and instruction have made a dent in your child's understanding. You get to watch them, in many ways, struggle with all the things you struggled with when you first learned your baby had hemophilia: is he really bleeding? Must I infuse him now? Why is it always in the middle of the night? Or on a weekend? Or on a holiday? Or at DisneyWorld? How many veins can we blow in a day? How many more people are giong to ask, how did he get that shiner? (or goose egg) Why didn't I bring the factor with me???
School starts tomorrow for him after a long break. He's got some explaining to do to all the students, friends and teachers who will see him. Or not. He can just tell them the other guy got it a lot worse.
UPDATE TUESDAY, 5,000 IUs later...
We visited the ER, had a CT scan (haven't done that since he was 2?), and all is well. Only his elbow, knee, nose, forehead and pride were hurt!
Great Book I Just Read
Adrift by Steven Callahan
This is the incredible true story of one of the only persons in history to survive longer than a month alone at sea. In 1982, for 76 days, Steven Callahan, an experienced sailor, drifts 1800 nautical miles across the Atlantic, in a leaky inflatable raft he dubs the Runner Ducky when his cherished boat the Napoleon Solo is sunk during a gale. Despite the catastrophe, and his horrific struggle to survive, Steven’s name for his new home reflects a wry humor, unbridled optimism and even perspective, all of which no doubt led to his amazing survival. Aside from his amazing stamina in constantly trying to keep a solar still functional, bailing out his raft, checking his location via a home made sextant, perhaps the most amazing thing in the book is Callahan’s reverence for the dorado fish (mahi mahi) that eventually accompany him under his raft the entire way to Guadeloupe island, where he eventually lands. His relationship with the fish is almost spiritual, and even after his rescue, he worries about them and silently thanks them. Callahan still sails, and is inventor of a new raft called the Clam, which he created based on his knowledge of survival in the open sea-- a lasting gift to other sailors from his sacrifices and near-death experience. Four stars!