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Sunday, June 10, 2012

Home of Elvis... and the Ancient Greeks*: Pulse on the Road


Memphis Mayor A.C. Wharton
Pulse on the Road presented its program in the beautiful city of Memphis. We were honored to be invited by the Tennessee Hemophilia and Bleeding Disorder Foundation to their annual meeting, where over 300 family members assembled to learn more about efforts to preserve hemophilia care. The meeting opened on Saturday with a speech by Memphis Mayor A.C. Wharton, Jr., an intelligent and charming gentleman, who pledged his support for the Foundation. Mary Hord, executive director, then reviewed the incredible roster of programs and activities provided by this successful and high-functioning NHF chapter. They have over 1,000 families registered, something to be proud of in itself!

Laurie meets Rev. Shane Stanford
Then came a profound, humble, and at times very humorous recollection of a personal and positive life. Speaker Rev. Shane Stanford is the pastor of a church in Memphis, recently relocated from Florida, who has hemophilia and HIV. I don’t want to give away his spectacular presentation, all done without a single power point, but it is of a celebration of life over adversity. I don’t think there was a dry eye in the room, although everyone kept saying they had allergies or something, and a long line formed after his speech, so families could meet this remarkable man in person. I had long wanted to meet him, based on a recommendation of mutual friend Barry Haarde; mission accomplished, and we are all the richer spiritually for having met Shane.

This morning we held Pulse on the Road after breakfast. Not easy to digest (insurance that is), our material was absorbed and contemplated by a rapt audience. We covered the ACA and what’s happening in Tennessee. Michelle Rice presented the NHF Insurance Selector Tool (you can download it at www.hemophilia.org, which I highly recommend) and everyone got busy comparing two hypothetical insurance plans to see which one was better. Many participants praised the tool as essential in learning to master personal insurance.

Michelle Rice, NHF, speaks as Kelly Fitzgerald, PSI, looks on
Kelly Fitzgerald covered the Affordable Care Act (ACA) and what to watch out for coming in 2014. Then we held our Community Forum, in which audience members could ask questions of our panel of experts, which included Catherine Joyce, social worker at a local HTC.

It was a great weekend, with a fantastic foundation and its attentive and friendly hemophilia family members. Thank you, Mary Hord and team, for a memorable visit!


Social Worker Catherine Joyce answers a question
Using NHF's Insurance Selector Tool




We do POTR for their future!




Laurie & Zoraida, LA Kelley Communications

The POTR Speakers

* "Once in a Lifetime" Talking Heads

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