“The only true voyage of discovery consists not in seeking new landscapes, but in having new eyes” Marcel Proust
Vision is perhaps the single most important possession of leaders, especially those who seek to change and improve the future of its people. Saturday was a day of discovery in Puerto Rico for the hemophilia community as the Asociación Puertoriqueña de Hemofilia (APH) met as a team to work on fundamentals of leadership, such as vision.
|Laurie, Zoraida and the APH Team|
I was honored to be the facilitator for such a day. I have a workshop called “Reach the Summit,” which I have given in other countries to help jumpstart hemophilia nonprofits in their bid to change hemophilia healthcare in their countries. It’s normally a three-day workshop, and that’s just one workshop! It could easily be two to three workshops, too. But we had just one day for now.
My visit in April was to assess hemophilia care in Puerto Rico, our “51st” state, and to see if there were ways we can help. The Hispanic community in the States is our largest minority population, and cities like Boston, where I am, have a huge Puerto Rican (and Dominican) population. My own assistant and colleague, Zoraida Rosado, who accompanied me, is from Puerto Rico. So Puerto Rico is never far from my mind. I followed up my April trip by writing a feature article in PEN (see our Archives to download!), which outlined the task head of APH to improve care. What naturally came from that was the idea of a workshop to jumpstart the new direction of APH.
|Laurie presents |
|Break time: Milton (Axium), Jésus |
(Novo Nordisk) and Laurie
But you can’t go in a new direction if you don’t know where you are going, and you can’t know where you are going unless you have a vision of where. I compare this process to mountain climbing, which I have now actually done in climbing Mt. Kilimanjaro last August. You need to know what your purpose is, your summit, where you will end up. You need a map (strategy), proper gear (resources), a compass (values), a contingency plan (flexibility), fellow-mountain climbers and porters (team), and a mountain guide (coach).
Our team attending that day consisted of parents and patients with hemophilia who have been running the APH, and representatives from industry, including Novo Nordisk, Baxter and Bayer, and a local specialty pharmacy, Axium.
|Johnny Márques and Jésus |
The day started by examining limiting beliefs, because leadership requires that we break through these to begin our climb. I recalled my limiting beliefs before climbing Kili: I’m too old, I’m not in good shape. We did some fun exercises that demonstrated how we are all shaped by childhood and our daily routine to think a certain way. We may need to break out of the “box” to find solutions to hemophilia care in PR.
Next, we discussed principles of leadership and each person in the room shared who his or her leadership model: who is the one person from history or even currently, personally, professionally or spiritually, who we look up to as a leaders, and why?
Then, we tackled principles of vision, but only briefly. This was a shame, because almost all leadership workshops start with creating a vision. From the vision, all things flow. There just wasn’t time as we wanted to end the day with concrete goals. So we then moved on to mission statement, which the APH already had. But it wasn’t a clear one. We spent an hour taking it apart, examining it, challenging it and finally the group reassembled, and put it back together, with half the words and five times the power!
We worked through lunch on goals under five headings: organizational (including board development); medical; communication; lobbying; and patient programs. The goals were easy! We all knew what needed to be done. What was fun about this? Seeing how one goal couldn’t be reached unless another goal was first accomplished. The group naturally prioritized their goal. Goal #1? Get a phone number for the association! #2? Get business cards for NHF’s meeting in Orlando in November!
|Zulma of Baxter presents|
The group was so excited about the new mission that they wanted very much to return to vision. This means we had to scrap the strategy session. But momentum was high and momentum is the fuel, the passion for change! I couldn’t let that go. Three participants had already come to me quietly and individually and said, “I know what the vision should be.” That’s the kind of leaders we look for.
|Tamara writes the new |
So we spent the last session retuning to vision, and wow, did creative sparks fly! I never saw a group pull together a vision so quickly, so coherently, so beautifully. Three people offered vision statements, and they were all quite similar. With a little reworking, shaping, molding, the APH had a new vision. This vision would serve as a beacon, to guide them through the coming years as they navigate rocks, hills, bad weather on their way to the healthcare summit.
I was very proud to serve these remarkable and dedicated people. I hope we are paving the way for the APH to soon join NHF as a chapter, and start opening the doors of communication to a stronger community and better medical care on the island. Care there is very good, but there is lots of room for improvement. And together as a team, the APH will serve as effective advocates—in turn, “mountain guides”— for all Puerto Rican patients with bleeding disorders.
Thanks to all who attended, and especially to Baxter Healthcare which sponsored the room and refreshments.
Una comunidad de personas con hemofilia y profesionales de la salud abogando en pos de sus derechos a un mejor cuidado médico de exelencia.
A community of people with hemophilia and healthcare professionals advocating in pursuit of their rights for an excellent medical care.