|Untreated Hemophilia, |
|Laurie with Nancy S., who has a |
child with VWD
Why not before now? Timing, focus. We have been through many phases: the contamination of the blood supply and subsequent infection of thousands occupied our time and focus for years. Then came product shortages. The inhibitors. Even NHF had its own problems internally and struggled to assess leadership (CEOs came and went) and structure. That seems behind us now. And with Val’s leadership and vision, NHF turned its powerful eye overseas, especially to Africa.
Val Bias and Neil Frick visited Nigeria in September, marking the first time that someone from NHF has been to Africa. I’ve been traveling there since 1999, when I first visited Zimbabwe and Kenya, and am returning on November 30. Finally, finally America is showing its leadership and true giving nature in joining the international community and participating in partnerships that will help hemophilia nonprofits and its members in developing countries.
|Meeting FB friends: |
With Liz Purvis and Tater!
|With Mt. Kilimanjaro teammates |
Jeff Salantai and Julie Winton
|Craig Price, Erik Melde and Derek Nelson |
of Axiom Therapeutics
And looking at all the photos from NHF here, I realize that almost evey person pictured either sponsors a child with hemophilia or VWD in a developing country through Save One Life or has contributed in some way to Save One Life or Project SHARE. From summiting Kilimanjaro to raise funds, to making handicrafts that support a child, to sponsoring one directly, Americans have already been uniting globally---and now can take pride that their national organization will as well.
|"Arrrr!" With Matt Collins of CSL Behring|