Blog Archive

Sunday, July 14, 2013

Carnival Time!

Laurie Kelley reunited
with the DR boys
I spent 10 days in the Dominican Republic recently, and the highlight was our annual camp for about 40 boys with hemophilia. If you read my blog from last week, you will see that many of our boys live in extreme poverty. As founder Haydée de Garcia, president of FAHEM, the national hemophilia organization said, "Camp for them is like going to Disney World for an American child with hemophilia."

Get your carnival masks ready!

Camp--no matter how grand (like Paul Newman's camps) or small--like ours--is magical for any child but especially a child with hemophilia. Here, they get to be a regular kid, able to do so many things normally not allowed or even conceivable. Our boys played "baseball," using their bare hands and a rubber ball, but with what competitiveness! (Baseball is a national passion here) They made masks for carnival, the theme of the camp. Swam in a huge pool, did competitive ball games, had rap sessions with a counselor, watched movies, and best of all... got factor. The DR bought no factor last year, at all. What they had came from donations, like from Project SHARE, our humanitarian program. All the factor at camp this year was donated. And without factor, there would be no camp.
Abil loving pool time

We had a few surprises, like a visit from baseball great Stan Javier, formerly of the Mariners and Giants. And on the last day, Carnival! After breakfast, we heard horns blowing, percussion, and across the lawn came a carnival crew, and everyone got in on the action. No one can party like the Latins can!

I've watched this camp grow from an idea on paper, to a first attempt in 1999 to now a world class camp. It's a model for anyone running a camp for kids with hemophilia in developing countries. My boys, who were ages 8 and up in 1999, are now in their twenties and are counselors--and tower over me! They love that I return to camp when I can, and I in turn love to be there, and love them. They teach me all the time about reliance, appreciation and giving back. Some of them

Joint damage on a boy with hemophilia 



Wilson relaxes on the swings


Laurie suggests exercises to do
Playing a ball game



The winners!




Physical therapy session

¿Quien es?
Learning to do an infusion
Stan Javier of the Giants visits
Mecho and Laurie join in!
Coach Cuchito with Haydée



Air crutch-guitar?




Till next year!
 were in constant pain at camp this year, discernible only by a serious look on their faces when they thought no one was looking. They do without: ice applied to a joint instead of an infusion of factor. But nothing dims their joy. We should all live so in the moment, with such joy.

(Thanks to Save One Life for a donation to help meet camp expenses! Many of our beneficiaries attended camp, along with program director Tricia Sico. If you want to help with camps like this, consider making a donation to our camp campaign going on now at www.saveonelife.net  Gracias!)

Carnival time!

2 comments :

Allison Pohl said...

This is such a great use of Save One Life funds! And it puts our American life with hemophilis into perspective. My son is at camp this week and his biggest complaint will be how hot it was! Great job to you and your crew!

Juane said...

Thank you for always supporting us, excellent article about camp FAHEM 2013, you will always be valuable and dear to the hemophilia community of Dominican Republic

 
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