A crammed, enormous audience sat quietly listening to interviews with four speakers during the opening ceremony: Alain Weill, president of the WFH, and Jorge de la Riva, chair of NHF. Then, Alain Baumann, CEO of WFH and Val Bias, CEO of NHF. Jorge's opening speech was passionate and focused on what he experienced when his son was born with hemophilia 21 years ago. "I am willing to fight for my son with my dying breath, for his health, his future, his life," he revealed to the crowd. "Life chose this for us," he remarked, but hemophilia would not dictate their life. Jorge acknowledged that his son is privileged to grow up with plentiful access to factor, but is cognizant of the underserved globally. He quoted Olympic skater Scott Hamilton, who also had a chronic disorder: You can succumb to it, adapt to it, or evolve and become better because of it. This latter is what we want to focus on in our community. Evolve. Jorge added, "It can be a gift, which can spur you to action, for something bigger than ourselves."
|At Save One Life booth: Martha Hopewell (executive director),|
Agnes Kisakye (Uganda), and Usha Parasarathy (our India liaison)
We have four days of meetings, symposia and networking ahead of us. Then two weeks from today, I start my ascent up Mt. Kilimanjaro! Why? To fundraise for Save One Life, to bring attention to the plight of the poor in developing countries with hemophilia, to summit and unfurl our banner on the highest peak in Africa, and the highest freestanding mountain in the world. It's a metaphor for our work in other countries: a long, hard climb with no amenities, but the view at the top makes it all worthwhile.
Fun scenes from close of NHF Conference last week: